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#disability

62 posts48 participants8 posts today

MUTUAL AID - $80/225

Hey! It's Glitch. Friendly neighborhood mod here at cyberpunk.lol!

Neurodivergent, transgender, disabled, chronically ill. Can't work due to multiple disabilities, so right now mutual aid is my only lifeline until I can get my disability benefits.

I could use some help - I have a couple of bills I need to pay, I need to get more cat food and cat litter, personal care and hygiene items, and a few other necessities. If you're able to help out, it would be greatly appreciated!

Paypal: paypal.me/themastercircuit

@MutualAidNet
@mutualaid@a.gup.pe
@mutualaid@kolektiva.social
@mutual_aid
@MutualAidVisibility @disability
@mutualaidmedia
@FediAid

Continued thread

Anyway, can someone please lend me some suggestions to accomodate myself and talk to my dr and school about this shit? even if it's just headphone suggestions, that'd be great. I prefer earbuds, but I'm flexible. Maybe I'm missing something, idk. #disability #HoH

Continued thread

And professors are human and ableist and lazy sometimes. For someone like me, who technically does not need hearing aids and has a complex "there's pigeons in the satellite dish" problem, idk.

But I spend a lot of energy begging ppl to speak louder, face me when they're talking, and turning background noises off, so I can understand what they're saying. "Just text it to me" bcuz they've repeated themselves four times and now everybody's frustrated #disability #HoH

Continued thread

And I don't even need to ask d/Deaf and HoH folks how well that goes. I can guess just based on the fact that we have to make complaint campaigns to the FCC for large companies like Netflix to have accurate fucking captions as though the ADA hasn't been law for nearly 35 years.

My whole problem right now is that YouTube doesn't require captions or transcripts & their auto-generated captions are ass, and that's for English speakers with no accents doing silly skits. #disability #HoH

Continued thread

One of those things which needs more awareness among parents, esp in lower income families, so they don't just think their kids are hard-headed and not listening.

However, it isn't "clearly abnormal hearing test, put single diagnosis code in chart, send patient for hearing aids" and that means I have no tangible diagnosis for an easy-to-fill-out form for school requesting like, captions or transcripts for every video #disability #HoH

Continued thread

My audiology tests are "normal" but of course that's not the full story of how hearing actually works. I have tinnitus and compressed nerves, so while I technically hear the full range of what's expected for my age, that doesn't mean I can actually always understand speech.

I've also got auditory processing problems, which that's definitely lifelong, but never diagnosed. #disability #HoH

I'm struggling a bit to figure out how to help myself here. I emailed my professor and the accommodation office at my school, bcuz frankly I'm not used to asking for accommodations for this hearing shit. It's not something that hearing aids can help (I don't think?)

Professor sent out links to YouTube videos. The audio quality isn't good and I can't understand what's being said between that and the accents of some of the speakers. No captions.
#disability #HoH

#ADHD ers: please help with an open-ended question regarding medication. Looking for advice based on people's own personal experience, not 'studies have shown'. I would love for a few people to share their personal experience of being on a stimulant for the first time, especially as an adult. For some reason I'm really nervous about taking it for the first time, I think because I have so many other chronic health issues, particularly chronic pain, and I'm really really really hoping this helps me. All of my other health problems have resisted treatment for 15 years so I have a lot of trepidation around having tried dozens and dozens of ineffective treatments.

I don't know exactly what my question is, besides 'what should I expect?' A big part of my problem is that I always attributed my functional difficulties to how poorly I felt, but I'm feeling a little hopeful that maybe the reverse might be true, that my difficulty functioning has caused me extreme stress that has led to my feeling so poorly. Has anyone had a similar experience? I would love to hear about (hopefully success, but be honest) stories of how treating ADHD with medication has intersected with other health conditions. Do you have any advice about navigating these early stages, particularly dealing with side-effects, navigating with practictioners, sleep interactions, and finding the right medication/ dose?

I'm looking for advice based on personal experience, not on 'studies have shown'. Thank you!

:boosts_ok_gay: (350/600) EMERGENCY August mutual aid! Due in FIVE DAYS (Sept 1)

Daily repost:

Please help! We're disabled and poor, and we need $250 for meds, food, and doctor appts. Our tribal food benefits that were implemented during the pandemic have now expired, despite that the pandemic is still ongoing.

It's scary how close we have to cut it every month lately.

Links:

paypal.me/ramavabray

patreon.com/ifwhen

Please boost, and if you can, give. You're saving our lives.

Thank you for reading.

#disability
#MutualAid
#MutualAidRequest
#IndigenousMutualAid
#TransMutualAid
#TransCrowdFund
#DisabilityCrowdfund
#neuroDivergent
#LGBTQIA
#poverty
#DisabilityMutualAid
#TransCrowdfund
#Schizophrenia
#GTFOMyState
@mutualaid

PayPal.MePayez Jason Burgess avec PayPal.MeRendez-vous sur PayPal.Me/ramavabray et saisissez le montant. C'est signé PayPal, donc c'est simple et sécurisé. Vous n'avez pas de compte PayPal ? Pas de problème.

So many people have told me to "just push through and DO XYZ despite being 'exhausted'". Those people don't see the amount of fixing I need to do afterwards.

Just yesterday I published my 2 poetrybooks (again). Today I saw spelling errors, publishing errors, blurb errors, whole title was WRONG, and more.

All because I pushed.

This is a reminder not to listen to the toxic positivity group. They don't understand disability and your needs.

You do.

Stakeholders call for lasting solutions to dyslexia challenges

"At the 2025 African Dyslexia Conference event, the Chief Executive Officer of the African Dyslexia Organization, Roselyn Kyere Nartey said the condition has long been neglected, and she is using the conference to champion action towards addressing the challenge."

myjoyonline.com/stakeholders-c #Education #Disability #Africa

dyslexia
MyJoyOnlineStakeholders call for lasting solutions to dyslexia challenges - MyJoyOnlineKey personalities as well as language experts converged in Accra to deliberate on finding lasting solutions to dyslexia challenges.

Campaigners have warned that nearly 600,000 disabled people could be at risk from the next round of the government’s welfare reforms.

But dont worry, your government is investing in lots of new prisons, so at least you'll have a roof over your head when you protest.

#Disability #Welfare #UKPolitics
bigissue.com/news/social-justi

Big Issue · Labour’s next round of benefit cuts risks hitting 600,000 disabled peopleBy Chaminda Jayanetti

:boosts_ok_gay: (350/600) EMERGENCY August mutual aid! Due in SIX DAYS (Sept 1)

Daily repost:

Please help! We're disabled and poor, and we need $250 for meds, food, and doctor appts. Our tribal food benefits that were implemented during the pandemic have now expired, despite that the pandemic is still ongoing.

It's scary how close we have to cut it every month lately.

Links:

paypal.me/ramavabray

patreon.com/ifwhen

Please boost, and if you can, give. You're saving our lives.

Thank you for reading.

#disability
#MutualAid
#MutualAidRequest
#IndigenousMutualAid
#TransMutualAid
#TransCrowdFund
#DisabilityCrowdfund
#neuroDivergent
#LGBTQIA
#poverty
#DisabilityMutualAid
#TransCrowdfund
#Schizophrenia
#GTFOMyState
@mutualaid

PayPal.MePayez Jason Burgess avec PayPal.MeRendez-vous sur PayPal.Me/ramavabray et saisissez le montant. C'est signé PayPal, donc c'est simple et sécurisé. Vous n'avez pas de compte PayPal ? Pas de problème.

Telehealth provisions for Medicare are disappearing Sept. 30. Which is really dumb. My specialist is at Stanford and I live 2500 miles away, meaning I would have to travel twice year to see him, which is really hard on me. And there are many people in the chronic illness community who are mostly or totally bedbound. You can take action by calling your people in Congress and tell them to support the Connect for Health Act.

#MEcfs #LongCovid #ChronicIllness #Disability

mailchi.mp/meaction/help-us-sa

mailchi.mp500: We've Run Into An Issue | Mailchimp

MUTUAL AID - $80/225

Hey! It's Glitch. Friendly neighborhood mod here at cyberpunk.lol!

Neurodivergent, transgender, disabled, chronically ill. Can't work due to multiple disabilities, so right now mutual aid is my only lifeline until I can get my disability benefits.

I could use some help - I have a couple of bills I need to pay, I need to get more cat food and cat litter, personal care and hygiene items, and a few other necessities. If you're able to help out, it would be greatly appreciated!

Paypal: paypal.me/themastercircuit

@MutualAidNet
@mutualaid@a.gup.pe
@mutualaid@kolektiva.social
@mutual_aid
@MutualAidVisibility @disability
@mutualaidmedia
@FediAid

PayPal.MePayez Tobey Cook avec PayPal.MeRendez-vous sur PayPal.Me/themastercircuit et saisissez le montant. C'est signé PayPal, donc c'est simple et sécurisé. Vous n'avez pas de compte PayPal ? Pas de problème.

I’ve been thinking deeply about the word normal.

That word has hovered in the background like an invisible ruler for most of my life, measuring how well I fit into the world. As a blind and neurodivergent person, I have been reminded again and again through systems, spaces, and attitudes. My existence is seen as outside that invisible line.

Normal is presented as harmless, even kind. “One day you’ll live a normal life.” “We just want you to be normal.” But beneath those words sits the demand to shrink yourself, hide what makes you different and mould your life into shapes never made for you. The cost is enormous. One learns to police themself constantly and feel shame for moving at a different pace, communicating in unsettles others, or existing outside the blueprint.

Normal polices everything. It sets the speed of pedestrian crossings that change before I can cross safely. It shapes the design of offices where quick talkers are rewarded and slower processing is dismissed. It lives in classrooms that label difference as disruption and hides in moral language, as though being “normal” is the same as living a good life. However, these are not natural truths. They are decisions made by architects, teachers, policymakers and employers. People defend the idea of normal with familiar lines. They say the world cannot bend for everyone, or that people have to fit into society. They say difference makes others uncomfortable. "To hard" always means too hard for those already at ease. “Fit into society” ignores that society is built by human hands, and what is built one way can be built another—Impactsl and heavy. There is the loneliness of being invisible and present in a room, but recognised only for how well you perform a version of yourself that others accept. There is grief for the years lost to masking, passing and striving to appear “close enough” to normal. There is the exhaustion of having to argue every day for dignity. The myth of normal doesn’t just exclude but also limits what humanity could be.

So what do we do? The solution is to let go of normal and stop pretending it is real. Society needs rules for safety and fairness, but those are not the same as demands for sameness. We commit to rules that guard dignity and protect people from harm, without flattening the richness of difference.

The way forward is not charity; nor is it praising people like me for “overcoming.” The way forward is rights and recognising that when someone asks for accommodation, they are not asking for a favour. They are asking for what is required to participate fully. Access is not an extra.

This means building streets, classrooms, workplaces, and systems that expect variety. Listening when people say what they need and respecting those needs are part of our shared responsibility. It means refusing to equate belonging with passing as normal and recognising that belonging must never be conditional.

As a blind and neurodivergent person, this is not abstract but a part of daily life. It is waiting in offices where names are reduced to numbers. It is streets that demand a pace I cannot match. It is conversations where my way of speaking is read as wrong. And it is the constant reminder that “normal” was never designed to include me.

I refuse that word. I refuse the shame it carries. I refuse to disappear into a mould that was never real.

The truth is, nobody is normal. We are all different. The choice is whether we keep clinging to a myth that divides us or build a world where difference is expected, respected, and valued.

I know which world I want to live in.