actual good news for once - researchers have a biomarker test for ME/CFS and likely for Long Covid as well, leading to a potential therapy
Caveat, this is early stages, and like auto-immune, not all patients express the same
Still, it might put to the end the general denial of both conditions in the medical community
https://www.montrealgazette.com/news/health/article1054114.html
"Using language to describe ME"
From the Winter 2024 InterAction magazine of Action for ME
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Boy I tell you what guys, the dating game is tough when you can't leave your house or talk out loud.
"CBT and graded exercise therapy studies have proven that ME/CFS and long COVID are physical diseases, yet no one is aware of that"
https://www.frontiersin.org/journals/human-neuroscience/articles/10.3389/fnhum.2025.1495050/full
Screenshot from July AMMES email newsletter
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
New e-letter which makes many interesting points:
"Patients with severe ME/CFS deserve better than unproven theories" by Hilda Bastian @hildabast (writer, scientist) (note: she doesn't have ME/CFS herself)
https://www.bmj.com/content/389/bmj.r977/rr-30
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Google Translation of:
“Statement from the German Society for ME/CFS
on the statement of the German Society of Neurology of 22 July 2025”
I’ve started bringing my seat-stick out with me more, as a way *to put up my feet*.
I can feel self-conscious about putting my feet up on another chair.
With my orthostatic intolerance as part of my ME, my body doesn’t like having my feet on the floor for long.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs @longcovid #longcovid @pots #pots
Heightened innate immunity may trigger chronic inflammation, fatigue and post-exertional malaise in ME/CFS
https://www.medrxiv.org/content/10.1101/2025.07.23.25332049v1
Co-authored by some of the biggest names in the ME/CFS world in the US
"Many of these underlying abnormalities worsened following exercise in ME/CFS patients, but not in healthy subjects; many abnormalities reinforced each other and several were correlated with the intensity of symptoms"
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
News Release 25-Jul-2025:
"Gut microbiome may predict “invisible” chronic fatigue syndrome & #longCOVID: Previously undetectable biomarkers in gut bacteria, immune responses, & metabolism offer hope for future diagnostic tools"
https://www.eurekalert.org/news-releases/1092282
Includes 4 minute video
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
"Chronic Denial: A debunked theory about chronic fatigue syndrome is being recycled to explain Long Covid—with troubling results" by David Tuller @david
https://www.openmindmag.org/articles/going-chronic
Screenshot from July AMMES email newsletter
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Book Spotlight: Then: A Conversation With Myself
From the Massachusetts ME/CFS & FM Association
https://massmecfs.org/members/members-spotlight/spotlight-book-by-elizabeth-glixman
Includes being able to read the illustrated book for free online
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Mini report on Capitol Hill Advocacy Week 2025
From the Massachusetts ME/CFS & FM Association
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
ME Research UK:
Naturally, there is a lot of interest around ME/CFS and the brain, especially considering symptoms such as cognitive dysfunction.
Read more about a study that explored brain differences related to the type of disease onset involved in developing ME/CFS - https://bit.ly/4m4ZOgs
#MEcfs #CFS @mecfs
From ME Research UK
The Independent has shared a powerful account https://tinyurl.com/mujfxvsh from Tracy Meggitt – a former biomedical research associate who was diagnosed with ME/CFS in 2018.
Read more: https://tinyurl.com/ym4s5sx4
New US study:
Elevated risk of new-onset #chronicfatiguesyndrome / myalgic encephalomyelitis up to four years after #SARSCoV2 infection
https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-025-06625-w
@mecfs
#MyalgicEncephalomyelitis #MEcfs #CFS #PwME Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 @novid@chirp.social #novid @novid@a.gup.pe #CovidIsNotOver
@auscovid19 #auscovid19
I thought I would repost this to highlight again some of the many varied symptoms that can be found in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome
Particularly relevant when similarities with the #LongCovid presentation in some people are being missed
#MEcfs #CFS #PwLC @longcovid @mecfs
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"This analysis emphasized that people with ME/CFS have important first-hand knowledge to contribute to the field."
https://via.library.depaul.edu/cgi/viewcontent.cgi?article=1231&context=depaul-disc
Screenshot from Science for ME weekly update
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
“…When I hear about my old schoolmates becoming doctors or accountants while I'm disabled and unemployed living with my parents as my carers, it can be easy to think you're a failure and weak or be worried people see your life as unimpressive and pathetic…”
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
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Fulltext now published:
Beneficial effects of intermittent intravenous saline infusion in dysautonomic patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: a case-series
https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2025.1601599/full
Hopefully a double-blind trial will be done somewhere
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
The plan is finally online:
"ME/CFS: the final delivery plan.
The final delivery plan on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), focusing on 3 main areas to improve care and support for those with ME/CFS"
https://www.gov.uk/government/publications/mecfs-the-final-delivery-plan
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
