Le 15 mars dernier lors du #LongCovidAwarenessDay, une de nos membres n'a pu venir à l'action de Saint Denis.

Un camarade, sur place, avait lu son témoignage et nous l'avons retranscrit sur cette page (À lire, et à relire):

https://winslow.fr/un-temoignage/

Anlässlich des gestrigen #LongCovidAwarenessDay ein Hinweis auf die Beiträge in der Kategorie #Barrierefreiheit auf unserem Blog. tk
https://archive20.hypotheses.org/category/barrierefreiheit

#LongCovid- & #MECFS-Betroffene kämpfen gegen Müdigkeit, Erschöpfung, Konzentrationsprobleme. Das Alltag wird zur unüberwindbare Hürde. Komplett aus dem Leben gerissen. Ihre Geschichten verdienen Gehör & Anerkennung. Es braucht Therapieangebote. #LongCovidAwarenessDay #PIRATEN

Zum 5. Internationalen #LongCovidAwarenessDay fordern wir #PIRATEN: Erkennt #LongCovid & #MECFS als schwere Erkrankungen an, schafft Therapieangebote & Behandlungsmethoden. Menschen wurden hierdurch komplett aus ihren Leben gerissen. Helft mit, ihnen zu helfen! Teilt den Beitrag!

This #LongCovidAwarenessDay I’m reflecting on how many people have been let down by governments, public health & medical establishments

How Covid has been downplayed, airborne spread ignored & vaxx and relax strategies pushed for the sake of capitalism

How many have Long Covid because of this?

Those of us who were disabled before the pandemic could see this wave of chronic illness coming - and many of us have been screaming from the top of our lungs the last 5 years.

Begging people not to take their health for granted & to wear a mask and protect themselves.

Warning them that there are no do-overs once you become chronically ill. Unfortunately very few people are listening - and many won’t understand the true devastation of #LongCovid until it directly impacts them. At which point it’ll be too late.

Despite seeing these waves of disability as an inevitable consequence of “let er rip” Covid strategy - one thing I did not see coming was how many people would willingly embrace not only ableism - but full on eugenics.

People in my own life who were previously kind & supportive have become cruel and angry. The masks have been ripped off. They don’t hesitate to tell me that they blame me for the restrictions placed on them in the early days of Covid.

That they will never again allow their freedoms to be infringed on in the name of protecting the vulnerable. One even went as far as to say “you’ve been sick for years - just die already.”

People who say these things don’t understand what disabled ppl understand all too well - your health is not a permanent state.

Everyone will become disabled eventually - some earlier than others. Many who think they’re invulnerable are already vulnerable and don’t even know it

Yet rather than adapting behaviour and pushing for a new normal that makes the world safe for everyone - most temporarily abled people have instead doubled down on hateful eugenics talking points and want us to stay home forever (or worse - die). It needs to stop.

Covid is airborne and we all share the air. “You do you” individualism is quite literally killing people. We need to start caring about the air we share as this will lead to a healthier society for everyone.

Until then we need to mask up. It’s easy, incredibly effective & it might save someone’s life. At the very least you will know you didn’t contribute to another person’s suffering - and you will be drastically reducing your own odds of getting Long Covid. It’s worth it.

https://www.disabledginger.com/p/i-dont-know-anyone-with-long-covid

Marking Long Covid Awareness Day with @cancovsoc and allies At the Vancouver Art Gallery, hundreds of pillow cases were laid out sharing the stories of people with #LongCovid. You can help raise awareness as well - head to https://covidsociety.ca/priorities/long-covid/ to send a letter calling for policy-makers to make Long Covid a priority!

[Photos courtesy of @cleanair604]

In Feb 2020, I went to New York for work. A month later, I could barely walk to the store across the street. Brain fog got progressively worse. It took me almost a year to start being able to walk minimally again and for the fog to clear. I still remember the day I woke up with mental clarity for the first time in 10 months. 3 years to fully walk long distances again with a rehab program.

It's #LongCovidAwarenessDay. I'm mostly functional now. A lot of people aren't. All the local long COVID specialist programs have had their funding dried up. I'm one of the lucky ones who got help, and got better enough to kinda sorta keep going.

What happens to the people who get long COVID now?

(This is a thread now.)

I was an athlete for years. I did fitness competitions, trail running, mountain running, obstacle course races, interprovincial bicycling, hiking, and martial arts. I was a professional dancer, an aerialist, a model, and a LARPer. These days, I spend the vast majority of my time sitting down. I go to the gym a couple of times a week and try to go for walks every day, but if I exert too much or think too hard for too long, I'm exhausted.

This is not the normal feeling of being tired after a grueling workout. It's not a mind over matter thing. It's the kind of fatigue you feel when you're sick or dealing with a nasty injury. #LongCovidAwarenessDay #LongCovid #PostExertionalMalaise #ChronicIllness

#LongCovidKids
#LongCovidAwareness
#LongCovidAwarenessDay

It’s International Long Covid Awareness Day, and my latest article looks at the reasons why people believe they don’t know anyone with Long Covid.

We desperately need increased visibility into this debilitating chronic illness so that we can raise awareness and fund treatments, mitigations and cures.

Anyone can get Long Covid. It’s not limited to ‘only the vulnerable’ or those who had a severe initial infection.

This disease does not discriminate. Even people with asymptomatic initial infections have found themselves disabled by Long Covid.

It’s time we start processing the trauma of the pandemic and stop living in denial.

We are in the middle of a mass disabling event, and the longer it takes us to admit that, the more people will be harmed.

Let’s spread the word that the only way to avoid Long Covid is to avoid getting Covid in the first place.

Wear a mask. Stay home when sick. Clean and ventilate the air.

When we all agree to care about the air we share, we can begin to bring about real change.

https://www.disabledginger.com/p/i-dont-know-anyone-with-long-covid

@VivienneMatthiesBoon op X schreef:

Begrip van een #ministerVWS
die op #LongCovid zorg bezuinigd heeft ... dat zegt naar mijn mening al meer dan genoeg. We hebben helemaal niets aan het hieronder genoemde begrip of empathie als die niet verbonden wordt aan institutionele solidariteit.

https://threadreaderapp.com/thread/1900869219694113244.html

#LongcovidAwarenessDay #LongCovid #PAIS #MECFS @longcovid

Because of long COVID, my dad will never walk on the beach again. He can no longer play accordion or guitar because of long COVID.

Because of long COVID, I am no longer a martial artist, dancer, distance runner, or athlete. I no longer feel energetic. I no longer have proper restful sleep. I have aged rapidly. #LongCovidAwarenessDay #LongCovid #ChronicIllness

#LongCovidAwarenessDay is now trending across Mastodon

My own 5 year anniversary has already passed, but today is #LongCovidAwarenessDay.
There's so much to say, and nothing I want to say.
Just this... Wear a mask. It's astonishing how low this bar is, and how little effort it would take to make all of us a little safer and give all of us a chance at participating in community life, get healthcare, go on public transport.